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Congratulations to JFK Family Medicine Center: Center for Pregnancy for being selected as a 2015 Community Leader of Distinction!

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Living Beyond the Diagnosis: Follow-Up & Supportive Care

At the New Jersey Neuroscience Institute, we remain dedicated to our patients and their families long after diagnosis, calling upon multiple medical specialties to ensure the most comprehensive follow-up treatment program. As with any cancer, a patient’s prognosis and long-term survival can vary greatly from individual to individual. Prompt and routine medical attention, aggressive therapy and other support services are often critical for the best prognosis.   

Rehabilitation

Rehabilitation is an important part of the follow-up care the NJNI Brain Tumor Center provides to patients with brain and spinal cord tumors. Our expert team of physical, occupational and speech therapists at the JFK Johnson Rehabilitation Institute (JRI) work closely with the multidisciplinary team to decrease the burden of disease on patients and their families. The goals of rehabilitation depend on the patients’ needs and how the tumor and corresponding treatments affect daily activities. The interdisciplinary team makes every effort to help patients return to their normal activities as soon as possible. JRI’s rehabilitation team aims to improve patients’ function and enhance their quality of life.

Supportive services

When facing a crisis, there is often a need to connect with someone in the same situation. Patients, survivors and their families can find help through the Central New Jersey and Monmouth County Brain Tumor Support Group and the Benign Brain Tumor Support Group. Within the safety of these support groups, patients, survivors and their loved ones can share their fears, concerns and positive coping skills as well as gain emotional and spiritual support during turbulent times when their lives are touched by a brain tumor.

Led by nurses who specialize in neurology and neurosurgery as well as social workers, the support groups also offer a range of resources, educational support services and periodic lectures to help survivors, families and friends better understand the complex emotional and social issues following treatment.  

Hospice and Palliative Care Services

The NJNI Brain Tumor Center is committed to profoundly enhancing quality of life for patients and their families who are experiencing life-threatening illnesses. Haven Hospice is an integral part of the neuro-oncology program at the NJNI and among the most comprehensive hospice programs in New Jersey. It provides services to patients in the comfort of their own home, Mary Ann Hale Inpatient Pavilion and long-term care settings. The interdisciplinary hospice team is comprised of physicians, nurses, physical and occupational therapists, social workers, counselors, volunteers and clergy who manage patients’ physical and spiritual pain, and offers instruction, guidance, and support to family members, significant others, and caregivers. In most states, Medicare, private health insurance and Medicaid cover hospice care for patients who meet certain criteria.